Bryan Gould from Stourbridge, a longstanding MDUK volunteer who has OPMD, founded and chairs the group. With over 60 different conditions under the umbrella of ‘muscle-wasting conditions’, it can be hard to find someone with the same condition to talk to and share experiences with. OPMD is one of the rarest muscle-wasting conditions, mainly affecting the muscles around the eyes and those used for swallowing. Before the group started, Bryan had never met anyone apart from his direct family with the same condition.
Thanks to the support group, Bryan and others with OPMD are meet annually with the group’s next meeting scheduled for November 2023 on Zoom.
Wendy Mullen, one of the group’s members from Richmond, said:
We enjoy linking up with each other and emailing about various health issues, as well as sharing other happenings in our lives.
Please email Calley Clay on c.clay@musculardystrophyuk.org to sign up to attend future meetings.