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When I was diagnosed with myositis – a rare auto-immune disorder that involves chronic inflammation…
News
On January 9th 2023, following a small number of children having suspected significant adverse drug…
News
Zolgensma (Onasemnogene abeparvovec) is now recommended as an option for treating presymptomatic…
News
We were pleased to hear Rt Hon Jeremy Hunt MP confirm that the Energy Price Guarantee rise has been…
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Why are you fundraising for MDUK?
I’ve attended MDUK’s Celebrity Sports Quiz events at Lords…
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Many people would have been shocked and surprised by such a negative and inaccurate worldview being…
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What is spinal muscular atrophy?
Spinal muscular atrophy (SMA) is a rare muscle-wasting condition…
Blog
1,147 people living with FSHD took part in the Europewide study, led by FSHD Europe, to identify…
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Emma-Jayne is a dedicated caregiver to her son,…
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In her first year as Muscular Dystrophy UK’s (MDUK'…