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The Chancellor of the Exchequer, Rt Hon Jeremy Hunt MP, made an Autumn statement in the House of…
Your story
I’ve always been a gamer. When I was seven my cousin had a Super Nintendo and since then, I’ve…
News
In the Chancellor’s Autumn Statement on 17 November 2022, we were pleased to hear commitments to…
Your story
Having a muscle-wasting condition means there are lots of additional costs, which other households…
Your story
Jack wanted to spend his energy living his life. He had the mentality he could do anything,…
News
The Phase 3 SAPPHIRE study aims to assess the safety and effectiveness of apitegromab used in…
Blog
Ann’s stepdaughter, Sarah, was told she lived with probable limb girdle muscular dystrophy at the…
Your story
When we first got his diagnosis, we kept thinking: “when will he need a wheelchair, what kind of…
Blog
Facioscapulohumeral muscular dystrophy (FSHD) is the third most common inherited muscular dystrophy…
Your story
I have always enjoyed challenging people’s expectations of someone with a disability and I have…