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A career in science and muscular dystrophy I’ve always had a brain for science as opposed to…
News
We are supporting this process as one of two ‘Patient Experts’, and our Director of Care, Campaigns…
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In January 2019, we partnered with the University of Oxford to form the MDUK Oxford Neuromuscular…
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Limb girdle muscular dystrophy 2E/R4, also known as beta sarcoglyanopathy, is a progressive genetic…
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Understanding self-management support programmes Self-management support (SMS) is a care programme…
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XLMTM and liver disease Over the past few years, it’s become clear that some people with XLMTM can…
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In September we shared the news that NICE had published draft guidance on the use of the treatment…
Blog
The use of cells in muscle research  When scientists need to study how our muscle forms and grows…
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UPDATE (3 November 2023): A webinar regarding the EMBARK study results for families took place…