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Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

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Trustees Week logo: Navy blue font reading 'Trustees' Week' with an purple, pink, orange and blue star-like shape.
Announcing our latest Trustees
This Trustee’s Week (6 - 10 November 2023) we’re delighted to announce three new Trustee…
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News
"News update" in lime green text on a bright orange background.
One-year results of the EMBARK Phase 3 study
UPDATE (3 November 2023): A webinar regarding the EMBARK study results for families took place…
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News
A computer generated image of a garden. A wide accessible path weaves through a garden full of silver birch, foxgloves and ferns.
We'll be at RHS Chelsea Flower Show 2024
We’re thrilled to announce that we’ll be at the RHS Chelsea Flower Show next year! Our Show Garden…
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Blog
Carmela uses a walker on the catwalk of Bristol Fashion Show 2022.
Courageous Carmela is On A Roll
Carmela, who was diagnosed with LMNA congenital muscular dystrophy in 2017, is the subject of a new…
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Blog
Conference in South Carolina, USA.
Update on the 28th annual World Muscle Society 2023 Congress
One of the largest conferences in the field of neuromuscular research the WMS Congress brings…
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A close up of gloved hands in a lab. They are using research equipment.
2024 research grant round now open for applications
Calling all researchers – we’re pleased to announce the 2024 Grant Round for research proposals…
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Blog
A woman in a wheelchair sits with a mug of tea. She talks to another woman whose back is to the camera.
Northern Ireland Information Day – connecting our community
This free event, at the T3 Conference Centre, Lisburn, provided practical information and support…
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Blog
Jamie's Story
“The help from Muscular Dystrophy UK has ensured I can live day to day” – Jamie’s helpline story
Living with CMT has limited areas of my life. Some of the everyday things that people without my…
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News
Breaking News
NICE publishes draft guidance on ravulizumab for treating generalised myasthenia gravis
The National Institute for Health and Care Excellence’s (NICE) have published draft guidance ‒…
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Blog
Angela, Brian and their son Jonathan celebrate his 35 birthday with green number balloons.
Proud mother to start Town and Gown race in son’s memory
On Sunday 15 October Angela, with her husband Brian, will officially start Bidwells Cambridge Town…
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