A central part of our mission is to campaign for people’s rights, better understanding, and accessibility. We advocate on behalf of our community by amplifying our voices and raising awareness of the challenges we face and how we’ll overcome them.
Living with a muscle wasting or weakening condition can affect every part of our lives. Which is why we want to understand more about what you want us to prioritise in our campaigning work. We also want to find out what most affects your quality of life, in order to help us identify research we can support to make a difference in this area.
We have launched two surveys to help us to identify the areas where change is most needed.
- One survey is for people living with a muscle wasting or weakening condition and is available at Muscular Dystrophy UK Community Survey (living with a muscle wasting or weakening condition) (surveymonkey.co.uk)
- One survey is for family, partners, or friends who support someone living with a muscle wasting or weakening condition and is available at Muscular Dystrophy UK Community Survey (family, partners and friends) (surveymonkey.co.uk)
We know that many people who live with a condition also support others who do, so if this is your situation, please complete both surveys, so that you can share your views from both perspectives.
The surveys provide a chance to share your daily experience of living with a muscle wasting or weakening condition or of supporting someone who does.
Each survey takes less than 15 minutes to complete and they are open until 21 December 2023.
There is an opportunity to share your contact details with us if you wish to, as we would like to stay connected with you - but your survey responses will be kept anonymous.
If you have any questions about the surveys or would like to speak to someone about this area of our work in more detail, please contact campaigns@musculardystrophyuk.org.
Our muscles matter, and together we are stronger.