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Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

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The focus of the image is Morvenna who is sat in her wheelchair taking part in a inclusive dance class. She is wearing some patterned blue trousers, smiling and waving a ribbon. In the background, there are other people dancing and waving ribbons.
We’re proud to reveal our refreshed brand which will help us to reach and support more of our community
People often think of a brand as a name and logo. But it's about who we are, what we do and why we…
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Blog
Jessie and Hayley
The sky's the limit - friendship, fundraising and facing fears together: Jessie and Hayley's story
Jessie and I met in our second year at Newcastle University. We were both studying geography and…
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Blog
Research lab image of equipment
Muscular Dystrophy UK-funded researchers identify an approach to making muscles in the laboratory
Skeletal muscles are the muscles we use to move our bodies. They are made up of long fibres,…
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Your story
James Spotlight
Duchenne dating and sexuality
I knew I was gay since I was around fourteen, but I spent nearly twenty years hiding in plain sight…
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News
Breaking news
Approval of gene therapy SRP-9001 in the USA ‒ a significant milestone in the treatment of Duchenne muscular dystrophy
We reported recently on a key step in the US Food and Drug Administration’s (FDA) pathway for…
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Blog
Image of a baby's feet being held by an adult's hand
Meet the Panel Calling for Newborn Screening for Rare Conditions
Faster diagnosis is vital The first speaker on the panel, Rob Burley, Director of Care, Campaigns…
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News
Image is of a researcher with bright green gloves on filling out a form. Over the top is an orange banner that says 'Get Involved' in capitalised white font
Opportunity for people with Becker muscular dystrophy to take part in a Phase 2 clinical trial
UPDATE 06/07/2023 - Edgewise Therapeutics has announced the results from a study evaluating their…
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Blog
research
The latest FSHD research updates from the FSHD Society’s 30th annual International Research Congress
Last week I had the pleasure of attending the FSHD Society’s 30th annual International Research…
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Your story
Dawn is walking alongside her father Andy who is in his mobility scooter.
‘We bring each other's spirits up’: Father and daughter living with FSHD together
We call having FSHD our superpower, and the positive thing about having the condition is certainly…
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Your story
Selfie of Chris Stennett in his cycling gear, next to a road
Beyond my FSHD diagnosis: a chance to learn and grow
For much of my late teens and early twenties, the boys would make comments like “Are you scared of…
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