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At the end of 2023 we wanted to build a better understanding of the priorities of people living…
News
Findings from our recent survey reveal that people living with a muscle wasting or weakening…
Blog
When I got diagnosed in 1996, there were no treatments for muscular dystrophy. I was given this…
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As someone who was born with a severe physical disability, I am no stranger to hospital…
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Our information days have brought together people living with a muscle wasting condition, their…
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Thanks to my wheelchair accessible vehicle, I can travel far and wide, and since realising how good…
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Ben: I have Limb Girdle Muscular Dystrophy, and I’m 35 years old. I studied video editing at…
Your story
When I fell pregnant with my first son, Frankie, it felt like a miracle. I’d had five miscarriages…
Blog
Having been diagnosed with limb girdle muscular dystrophy 25 years ago, I am used to managing my…
Your story
I contacted the helpline a couple of years ago, before I worked here, about my housing situation. I…