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2020 was a strange and challenging year for us all; whether we are people living with a…
Your story
Kerry, a child-minder, described the shock when following over a year’s tests and delays the family…
News
We are pleased to announce that the 2017 Spinal Muscular Atrophy (SMA) best practice care guide for…
Press release
In response to Coronavirus and the social impacts on disabled people in Britain from the Office…
Your story
The personal, funny, mother and daughter episode sees Laura’s ‘on the sofa’ interview with her mum…
News
Marking Charcot-Marie-Tooth awareness month (October), we were joined in our CMT seminar by…
Your story
LGMD causes muscles, particularly in the shoulders, hips and thighs, to weaken and waste over time…
News
Marina is based at the Queen Elizabeth University Hospital in Glasgow, and works with children and…
Press release
Ed Davey – the newly elected leader of the Liberal Democrats – spoke today in the House of…
News
The virtual sessions will take place on Tuesday 22 September, and will last for 45 to 60 minutes.…